Choi, Sung | Digital Healthcare Research

Personalized Engagement Tool for Pediatric BMT Patients and Caregivers

Description

This project developed a tool to promote activation, communication, engagement, and self-management of pediatric blood and marrow transplant patients and their parents and found that patient-centric tools can successfully engage caregivers in hospital care.

Grant Number

R21 HS023613

Principal Investigator(s)

Choi, Sung

A novel health information technology communication system to increase caregiver activation in the context of hospital-based pediatric hematopoietic cell transplantation: a pilot study.

Citation

Maher M, Hanauer DA, Kaziunas E, et al. A novel health information technology communication system to increase caregiver activation in the context of hospital-based pediatric hematopoietic cell transplantation: a pilot study. JMIR Research Protocols 2015 Oct;4(4):e119. PMID: 26508379.

Principal Investigator

Choi, Sung

Project Name

Personalized Engagement Tool for Pediatric BMT Patients and Caregivers

Identifying unmet informational needs in the inpatient setting to increase patient and caregiver engagement in the context of pediatric hematopoietic stem cell transplantation.

Citation

Kaziunas E, Hanauer DA, Ackerman MS, et al. Identifying unmet informational needs in the inpatient setting to increase patient and caregiver engagement in the context of pediatric hematopoietic stem cell transplantation. J Am Med Inform Assoc 2016 Jan;23(1):94–104. PMID: 26510878.

Principal Investigator

Choi, Sung

Project Name

Personalized Engagement Tool for Pediatric BMT Patients and Caregivers

User-centered design groups to engage patients and caregivers with a personalized health information technology tool.

Citation

Maher M, Kaziunas E, Ackerman M, et al. User-centered design groups to engage patients and caregivers with a personalized health information technology tool. Biol Blood Marrow Transplant 2016 Feb;22(2):349–58. PMID: 26343948.

Principal Investigator

Choi, Sung

Project Name

Personalized Engagement Tool for Pediatric BMT Patients and Caregivers

Personalized Engagement Tool for Pediatric BMT Patients and Caregivers - Final Report

Citation

Choi S. Personalized Engagement Tool for Pediatric BMT Patients and Caregivers - Final Report. (Prepared by University of Michigan under Grant No. R21 HS023613). Rockville, MD: Agency for Healthcare Research and Quality, 2017.

Principal Investigator

Choi, Sung

Project Name

Personalized Engagement Tool for Pediatric BMT Patients and Caregivers

Innovating consent for pediatric HCT patients.

Citation

Platt J, Thiel DB, Kardia SL, et al. Innovating consent for pediatric HCT patients. Bone Marrow Transplant 2016 Jun;51(6):885-8. PMID: 26926228.

Principal Investigator

Choi, Sung

Project Name

Personalized Engagement Tool for Pediatric BMT Patients and Caregivers

BMT roadmap: a user-centered design health information technology tool to promote patient-centered care in pediatric hematopoietic cell transplantation.

Citation

Runaas L, Hanauer D, Maher M, et al. BMT roadmap: a user-centered design health information technology tool to promote patient-centered care in pediatric hematopoietic cell transplantation. Biol Blood Marrow Transplant 2017 May;23(5):813-9. PMID: 28132870.

Principal Investigator

Choi, Sung

Project Name

Personalized Engagement Tool for Pediatric BMT Patients and Caregivers

A qualitative exploration of the informed consent process in hematopoietic cell transplantation clinical research and opportunities for improvement.

Citation

Raj M, Choi SW, Platt J. A qualitative exploration of the informed consent process in hematopoietic cell transplantation clinical research and opportunities for improvement. Bone Marrow Transplant 2017 Feb;52(2):292-8. PMID: 27748736.

Principal Investigator

Choi, Sung

Project Name

Personalized Engagement Tool for Pediatric BMT Patients and Caregivers

Improving the informed consent process in hematopoietic cell transplantation: patient, caregiver, and provider perspectives.

Citation

Raj M, Choi SW, Gurtekin TS, et al. Improving the informed consent process in hematopoietic cell transplantation: patient, caregiver, and provider Perspectives. Biol Blood Marrow Transplant 2017 Sep 4. pii: S1083-8791(17)30692-4. PMID: 28882447.

Principal Investigator

Choi, Sung

Project Name

Personalized Engagement Tool for Pediatric BMT Patients and Caregivers

Implementation of acute care patient portals: recommendations on utility and use from six early adopters.

Citation

Grossman LV, Choi SW, Collins S, et al. Implementation of acute care patient portals: recommendations on utility and use from six early adopters. J Am Med Inform Assoc 2017 Sep 4. doi: 10.1093/jamia/ocx074. PMID: 29040634.

Principal Investigator

Choi, Sung

Project Name

Personalized Engagement Tool for Pediatric BMT Patients and Caregivers