Caregiver | Digital Healthcare Research

Empowering Cancer Patients Through Innovations in Information Technology-Based Reporting of Precision Medicine

Description

This research provided patients direct access to their cancer genomic sequencing results through a web-based portal: Helping Oncology Patients Explore-Genomics (HOPE-Genomics).

Grant Number

R21 HS024984

Principal Investigator(s)

Gray, Stacy W.

Interactive Patient-Centered Discharge Toolkit To Promote Self-Management During Transitions

Description

Researchers refined and implemented integrated digital healthcare enhancements to a previously developed, interactive, patient-centered discharge toolkit, finding that while patients used the toolkit, there were no significant changes in post-discharge healthcare utilization.

Grant Number

R21 HS024751

Principal Investigator(s)

Dalal, Anuj K.

Novel IT To Create Patient-Integrated Quality Improvement

Description

This research created, piloted, and evaluated FIQS, the Family Input to Quality and Safety tool, that allows pediatric patients and their caregivers to provide safety reports regarding their inpatient care.

Grant Number

R21 HS024553

Principal Investigator(s)

Bardach, Naomi S.

Computer-Supported Management of Medical-Legal Issues Impacting Child Health - Final Report

Citation

Gilbert, A. Computer-Supported Management of Medical-Legal Issues Impacting Child Health - Final Report. (Prepared by Indiana University under Grant No. R01 HS020640). Rockville, MD: Agency for Healthcare Research and Quality, 2016.

Principal Investigator

Gilbert, Amy

Project Name

Computer-Supported Management of Medical-Legal Issues Impacting Child Health

Symptom Monitoring and Reporting System for Pediatric Chronic Illness - Final Report

Citation

Lai J. Symptom Monitoring and Reporting System for Pediatric Chronic Illness - Final Report. (Prepared by Northwestern University under Grant No. R21 HS019071). Rockville, MD: Agency for Healthcare Research and Quality, 2014.

Principal Investigator

Lai, Jin-Shei

Project Name

Symptom Monitoring and Reporting System for Pediatric Chronic Illness

User-centered design groups to engage patients and caregivers with a personalized health information technology tool.

Citation

Maher M, Kaziunas E, Ackerman M, et al. User-centered design groups to engage patients and caregivers with a personalized health information technology tool. Biol Blood Marrow Transplant 2016 Feb;22(2):349–58. PMID: 26343948.

Principal Investigator

Choi, Sung

Project Name

Personalized Engagement Tool for Pediatric BMT Patients and Caregivers

A shared e-decision support portal for pediatric asthma.

Citation

Fiks AG, Mayne S, Karavite DJ, et al. A shared e-decision support portal for pediatric asthma. J Ambul Care Manage 2014;37(2):120-6. PMID: 24594560.

Principal Investigator

Fiks, Alexander

Project Name

National Center for Pediatric Practice-Based Research and Learning

Trial of the CarePartner Program for Improving the Quality of Transition Support - Final Report

Citation

Piette J. Trial of the CarePartner Program for Improving the Quality of Transition Support - Final Report. (Prepared by the University of Michigan at Ann Arbor under Grant No. R18 HS019625). Rockville, MD: Agency for Healthcare Research and Quality, 2015.

Principal Investigator

Piette, John D.

Project Name

Trial of the CarePartner Program for Improving the Quality of Transition Support

An Evaluation of an Interactive Social Media Web site for Parents who are Concerned about Immunizing their Children - Final Report

Citation

Glanz J. An Evaluation of an Interactive Social Media Web site for Parents who are Concerned about Immunizing their Children - Final Report. (Prepared by Kaiser Foundation Research Institute under Grant No. R21 HS019760). Rockville, MD: Agency for Healthcare Research and Quality, 2013.

Principal Investigator

Glanz, Jason

Project Name

An Evaluation of an Interactive Social Media Web site for Parents who are Concerned about Immunizing their Children

Facilitators and Barriers to Adoption of a Successful Urban Telemedicine Model - Final Report

Citation

McConnochie K. Facilitators and Barriers to Adoption of a Successful Urban Telemedicine Model - Final Report. (Prepared by the University of Rochester under Grant No. R18 HS018912). Rockville, MD: Agency for Healthcare Research and Quality, 2014.

Principal Investigator

McConnochie, Kenneth

Project Name

Facilitators and Barriers to Adoption of a Successful Urban Telemedicine Model