Use of mHealth Technology for Supporting Symptom Management in Underserved Persons Living with HIV (New York)

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Summary:

The success of HIV medications and treatments has significantly altered the course of the disease. While AIDS-related illnesses are no longer typically fatal, a new set of HIV-associated complications has emerged, resulting in a chronic disease that requires a lifetime of management. The ability to self-manage adverse symptoms of HIV illness has been shown to improve patient-centered outcomes. Mobile health (mHealth) technology has the potential to address many of the health care needs of persons living with HIV/AIDS (PLWH), including symptom management. This project will develop and test an mHealth application called mVIP that will incorporate findings from patient-centered outcomes research (PCOR) studies to improve the outcomes of PLWH. To improve outcomes for those most in need, the project will focus on communities with the greatest burden of HIV in the United States, including racial and ethnic minorities and those of low socioeconomic status.

The specific aims of this project are as follows:

  • Apply participatory design methods to incorporate PCOR evidence for HIV symptom management into an mhealth application (mVIP) for use in patient self-management 
  • Examine the effect of mVIP as compared to an attention control group on primary outcomes of symptom frequency and intensity in a randomized study 
  • Examine PLWH’s perceptions of the predisposing, enabling, and reinforcing factors for mVIP use, guided by the PRECEDE-PROCEED model of health program planning and evaluation (a model designed to help evaluators analyze situations and design health programs efficiently)

The project team will use a participatory design approach to develop and iteratively refine the mVIP. The mVIP will then be evaluated using a randomized study comparing outcome measures, including symptom status, quality of life, antiretroviral therapy adherence, and engagement with the health care provider. The team will also conduct focus groups with intervention participants to understand the predisposing, enabling, and reinforcing factors for mVIP guided by the PRECEDE-PROCEED model of health program planning and evaluation.

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