Project Details - Ended
- Grant Number:R21 HS023849
- Funding Mechanism:
- AHRQ Funded Amount:$297,772
- Principal Investigator:
- Project Dates:5/5/2015 to 4/30/2018
- Care Setting:
- Type of Care:
- Health Care Theme:
Successful patient engagement necessitates that resources align with the needs and preferences of diverse individuals, including those with disabilities. As healthcare shifts to home- and community-based settings, multiple forms of consumer health information technology (IT) are being created to support patients with their self-management responsibilities. However, the design of consumer health IT is rarely based on the needs and preferences of marginalized populations, whose members face barriers to technology use and active participation in their healthcare. In addition, developers rarely consult these individuals in the design of consumer products.
This project expanded on existing consumer health design guidance to include individuals with physical, sensory, and cognitive disabilities. The new guidance focused on one form of health IT: mobile health (mHealth) applications, and one functional domain: health information communication with social network members. To accomplish this goal, the research team sought to understand the challenges faced by individuals with disabilities when communicating with their social networks.
The specific aims of this project are as follows:
- Assess individuals with disabilities’ existing health information communication practices with social network members from a systems perspective.
- Identify the challenges individuals with disabilities face in leveraging existing mobile consumer health IT solutions for health information communication with social network members from a systems perspective.
- In partnership with individuals with disabilities, generate descriptive and prescriptive design guidance for consumer health IT based on an explication of existing practices and challenges.
This study employed a sequential, multi-method approach to empirically assess and collect design guidance from heath IT consumers with disabilities. Data were collected through interviews, task analyses, journals, and focus groups. Findings demonstrate that experiences with disability impact the mHealth functions and usability features needed for effective health management. For example, these individuals may communicate health information to social networks to advocate for improved quality of life; however, this functionality does not exist within mHealth applications. Additionally, design decisions based on aesthetics may preclude some individuals with disabilities from using the technology effectively. This study demonstrates the importance of partnering with individuals with disabilities when designing new or redesigning existing consumer health IT.